Resources for Patients and Families
Understand your DNA test and what Next-Generation Sequencing (NGS) means for cancer diagnosis and treatment. Simple, trusted resources for patients and families.
The NGS test is your DNA test or genetic test as it is also called. NGS stands for Next-Generation Sequencing, a powerful genetic testing technology that helps create personalized medicine approaches for cancer care and other serious diseases.
Understanding Genetic Testing in Cancer Care
What is a DNA Test? NGS Explained
This illustrated guide helps you understand what an NGS test is, how it works, what it reveals, and what questions to ask your doctor. It also includes note-taking space to help you prepare for your appointment.
Understanding Your DNA Test Results
This second infographic explains how to interpret your test results, how doctors choose treatments based on them, and how to understand the medical terms you may hear.
How NGS Helps Guide Cancer Treatment
Patient Journey Video: The Promise of NGS
Real stories and visuals walk you through how NGS testing supports faster diagnosis and personalized treatment. Hear from patients and learn how NGS benefits both individuals and healthcare systems.
Why NGS Matters for Doctors and Healthcare Systems
Discover how genetic testing is transforming clinical workflows, hospital care, and national health systems. Learn what it means for access, decision-making, and innovation in cancer treatment.
Real Stories: Patients and Physicians on NGS
Andreas’ Story: From Diagnosis to Remission
Andreas, a Greek lung cancer patient, shares his journey — from initial diagnosis to successful personalized treatment with NGS. Includes insights on emotional support and decision-making.
Dr. Amanda Psyrri: NGS in Clinical Practice
Dr. Psyrri explains how NGS is used in a university hospital setting and the challenges of access in smaller institutions. Learn how researchers and clinicians apply NGS in everyday care.
Dr. Alexia Bertuzzi: Personalizing Rare Cancer Treatment
Italian oncologist Dr. Bertuzzi discusses applying NGS in young adult cancer patients. She addresses the complexity of rare cancer care and the real-life success of personalized medicine.
Downloadable Patient Guides and Reports
Patient & Family Guide: NGS — The Key to Personalised Treatment
This downloadable booklet offers clear explanations, checklists, patient rights, and practical advice on getting tested. Co-developed with patient advocates and clinicians.
Patient Associations’ Views on NGS in the Post-COVID Era
A summary of findings from a European study co-authored by Instand-NGS4P, capturing patients’ attitudes toward genetic testing in a time of AI-driven healthcare advances.
Digital Health Literacy in the Era of Precision Oncology
Digital health literacy is vital in precision oncology. As treatments grow complex, bridging the patient-specialist gap requires not just technology, but digital tools integrated into human support systems.
Start Here If You’re Newly Diagnosed
Just Diagnosed? Start With These Two Guides
If genetic testing has been mentioned by your doctor, begin with these two resources:
- What is a DNA Test?
- Understanding Your DNA Test Results
They will help you know what to expect and how to prepare.
Share Your Experience
Help Others by Sharing Your NGS Story
If you’re a patient who’s undergone NGS testing or a clinician using NGS, we invite you to record and share your experience. Your video could help others understand the impact of genetic testing.
Contact us at events@instandngs4p.eu.
Submit your story by July 31, 2025